An update on the dressings pantomime from the other day. A different nurse turned up today to give me my daily injection and she said they were trying to move my visit into the morning. I expressed some concern about this as I am often out on a morning. She started to tell me how busy they were and I pointed out that I can't just sit around here between 9 and 5 not having a clue when they would turn up.
I explained that I was not trying to be awkward but there was no point n their turning up here and finding me out as that just wasted their time. I don't think they are used to having to enter into a dialogue with patients and consider their convenience as well as their own. I suppose I shouldn't be surprised as this is the NHS we are talking about.
Anyway the business of the dressings came up and she said it was her that had actually written the script for the "missing items" and it wasn't her fault that they hadn't arrived. I said I wasn't looking to blame anybody but that what had happened on Monday with me getting all the discomfort of having my leg dressed, getting the flack because the stuff wasn't there and then having the inadequate half-compression applied.
She looked behind the door where the nurses keep all their stuff and announced straight away that the "missing" stuff, bandages and creams were all there. As the chemist hasn't delivered anything this week they must also have been there on Monday.
What a farce.
In the meantime I went to the haematology clinic yesterday, Tuesday, as usual and my HG count was back up to 10.5. It really does seem to be stuck there.
He has changed me fromCyclosporin to Cellcept, a different immune suppressant. He says he had good results with it.
Tomorrow it's the leg ulcer clinic. Oh joy!
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